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The Question |
Subject:
knowledge sharing question
Date: Sun, 05 Dec 1999
From: Mike Simons
In
an effort to help others on this listserve (and those
that are not on the listserve but have Crohn's, Colitis,
Celiac..) I thought I would pose a question to this group,
and post the results on www.scdiet.org. Let's keep it
focused on our shared interest in colonic health, please.
:-) -Mike Simons
Here
goes: "Imagine you could rewind the last 5 years on video
tape. What do you know now that you wish you had known
back then?"
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The
Answers (listserve) |
Sun,
05 Dec 1999 21:20:33 -0600
From: "Bruce Ray"
That's easy - that the Dow Jones would be at 10000+ by
1999! But seriously, I wish that I'd known that I (probably)
had CD and that I'd known about the SCD. I sincerely think
that I'd be healthy today if I'd caught it then. Bruce
Date:
Sun, 5 Dec 1999 22:22:18 EST
From: PeteGould@aol.com
Well, I wish I'd known about the SCD back then. But to
really be most effective, I'd have to roll the tape back
to about 1978 when I first developed symptoms. In retrospect,
if I'd known about the diet _then_, I'd have done a lot
less damage. My food intake then must surely have made
things worse and worse. If only I could have "nipped it
in the bud." Pete
Date:
Sun, 5 Dec 1999 22:44:27 EST
From: BluesVan@aol.com
I wish I had understood that taking Antibiotics was killing
ALL of the bacteria (the good and the bad) in my gut,
not just the bad guys. My Doctors at the time didn't.
Brian
Date:
Mon, 6 Dec 1999 01:57:19 -0500
From: "Dan & Janice Davis"
-
That ulcerative colitis could actually be quite serious
and totally keep me down for months at a time. (I thought
of it as more of a nuisance back then.)
- That
taking antibiotics frequently was very bad for my health
- especially for the health of my bowel
- That
the foods that I was eating regularly as well as my
lifestyle were adversely affecting my health
- That
there are competent, trustworthy doctors out there that
actually care about their patients. I had given up looking,
thinking that there wasn't much hope.
- That
I am not a hypochondriac!
- That
changing my diet to the SCD could improve my health
so much in so many ways!
Date:
Mon, 6 Dec 1999 09:47:12 -0800
From: "James & Cathy Yokota"
I would not have taken Tetracycline as a teenager for
acne, thus causing a candida overgrowth and perpetuating
a vicious cycle leading to food allergies and U.C., forcing
me to drop out of college for six years until I discovered
the SCD and gained my health and strength back. I would
have treated my acne with probiotics and diet changes
instead. It's easy to get angry at doctors for not forewarning
us about the overuse of antibiotics, and the possibility
of colitis from taking tetracycline and eurythromyacin
(this information is well documented in medical books)
But now I'm armed with an even greater knowledge for the
rest of my life. Who knows how I'd still be eating if
I never acquired U.C. I'd probably still be eating fast
food and frozen burritos and twinkies. The body has an
amazing ability to heal itself over time, and we will
be much better off in thirty years than if we had never
acquired U.C./Chron's and learned of the SCD and how to
eat for health. Our children will be healthier, too. Cathy
Date:
Mon, 06 Dec 1999 16:07:47 -0500
From: Callahan
Mike, I would have seen an alternative minded environmental
ecology and nutritional MD to get the overgrowth of candida
and molds under control. I would have gone on the anti-candida
diet (similar to SCD but doesn't allow the sweets and
cheese on SCD), I would have taken the right vitamins,
herbs and probiotics for me.
Ruth Callahan Ulcerative Colitis, 10 years (No drugs,
in remission with SCD)
Date:
Mon, 6 Dec 1999 22:30:02 +0100
From: "Liz and Bas"
I haven't written in a year, but I couldn't resist this
question. What I wish that I had known five years ago
really has little to do with the diet itself, it more
has to do with the lifestyle around the diet. What I wish
that I had known was that in college I didn't have to
take everything so seriously. That I didn't have to try
to get good grades all the time and then beat myself up
when I didn't. I wish that I had know that I was allowed
to treat myself better. If I had known this and acted
on it, I think that I would have fed myself better (not
eating potatoes and ramen noodles all the time) and would've
have had less stress which is what I consider one the
biggest reasons for my disease. And also, I would have
skipped taking that extra MMR shot that my university
required.
Liz Morgan CD, diagnosed in '97 dietbound for 1 year and
8 months
Date:
Mon, 6 Dec 1999 16:46:00 -0600
From: Angela Kirkland
The theory that IBS, UC and CD are not separate diseases,
but might actually be the same digestive disease, just
a continuum from mild to severe intrigues me. I suffered
with symptoms of IBS for years. The only treatment I received
was antispasmodics to mask the problem. If I could rewind,
I would take the problem seriously, search for the true
underlying cause and make some major lifestyle changes.
I was totally in denial about the level of stress I was
under and I combined it with a poor diet of large amounts
of everything forbidden on the SCD and embarassing amounts
of sugar. I was also frequently sick with upper respiratory
stuff during this time and took several rounds of antibiotics.
I think the combination of the three did it for me. And
antibiotics were definitely what finally tipped the scales
from IBS to UC. My GP prescribed a course of high-powered
antibiotics, even though he was well-acquainted with my
history of IBS. Only two pills made me deathly ill. When
I talked to a nurse at my gastro's office, she said it
was one of the worst antibiotics he could have prescribed.
From now on, I'll stay away from them unless I'm dying.
Wish I'd known the damage they could do to friendly bacteria
five or ten years ago.
Date:
Tue, 7 Dec 1999 13:10:46 -0500
From: The Hansens
If it were me, I'd want to roll back the last 15 years.
That long ago I contracted a very mild case of UC that
was easily controlled with sulfasalizine. Eight years
ago the UC returned with a vengange when I took NSAIDs
and muscle relaxants for lower back spasms. If I knew
eight years ago what I know now, I would not have taken
all those meds for my back. Also I wouldn't have taken
all the antibiotics for periodic sinus infections over
those 15 years. (Instead I would have used the saline
rinses that serve me so well now.) Would I have also cut
way down on sugar, starches, and grains? Who knows, in
hindsight? I doubt very much whether I would have begun
baking with almond flour. It is regretable that the doctors
would not stress more the dangers of NSAIDs and antibiotics,
however. Bart
Date:
Tue, 7 Dec 1999 11:56:45 -0800
From: "Alpaslan"
If I could roll back time by 15 years I also.... > Would
I have also cut way down on sugar, starches, and grains?
Who knows, > in hindsight? I doubt very much whether I
would have begun baking with > almond flour. Thinking
alike with Bart
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The Answers (alt.support.crohns-colitis newsgroup) |
Bout
the only thing i wish is that i had become aware of nutrition
even sooner...could have saved myself a lot of grief.
If
i could do that ..... I think I would think again about
taking prednisone .... as I am still suffering from the
joint pains ... and I have been off of it since July
That
pizza is bad to eat when you've got CD. Sam
That
it is important to take calcium supplements whenever you
are on steroids. It might have lessened the damage that
the steroids have done to my bones over the years, but
no one insisted, no one told me that my belief that the
calcium might cause kidney stones was incorrect and pushed
the calcium on me like they should have. steve
i
wish that four years ago when i started getting really
sick and losing weight and having severe pain and fevers
that i would have pressed my doctors harder for an explanation
(instead of taking their "its stress because you are in
college-- maybe you are starting an ulcer). if i had pressed
more, i wouldn't have ended up being dx'ed and having
emergency surgery for a fistula that formed. thats all.
-leighann
I
would of liked to have known that I would have no difficult
getting pregnant even with CD and endometriosis. -Lee,
who feels sorry for anyone with CD that can't eat pizza
I
wish I had known that this group existed and that there
were so many people out there struggling with the same
problems I struggled with. Lori
I
wish I had realized that something was majorly wrong and
gone to see the doctor sooner so I would have been diagnosed
properly!
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