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Subject:
celiac disease & SCD
Date: Mon, 16 Apr 2001
From: Lori McCord
I
went to a Special Diets support group meeting at a local hospital.
I was hoping to find another SCDer. It was a small group and
with the exception of one,(a mom with an autistic son) had
celiac disease. They gave me a huge folder of information.
Boy, I am jealous, they can eat A LOT! Of course all the pamphlets
of gluten-free vendors are of no use to an SCDer because of
all the rice flour and sugar. My question is, SCD is also
for people with celiac disease...although some things on the
celiac no-no list are SCD allowable. Vinegar is one, and I
think I read green beans.....can't figure that one out. Do
we have anyone with celiac disease on our list? Also, celiac
disease is often mis-diagnosed and it is believed to be on
the rise. The leader at the meeting questioned whether I had
celiac as well. I don't think I do. (I do have UC) I can't
have the blood test now because I haven't been eating grains....so
it won't show the antibodies. Anyone with information, please
let me know. I am just trying to learn more about this stuff!
Hi Lori, Don't be jealous of the coeliac diet!! it doesn't
actually help coeliacs a great deal in my experience. A friend
of mine was coeliac and was seeing consultants, pschychiatrists
and neurologists for years. She was having heaps of "Gluten
Free" foods like breads, pasties, cakes, biscuits etc. I gave
her a copy of BTVC
and she's been following it religiously for over a year now,
and she is now totally symptom free and no longer needs to
see so many "experts" just the usual check up with the gastroenterologist.
She is
so delighted with the results, especially having normal bm's,
before SCD she had one [bm] a fortnight...which must have
been unbelievable agony.... I was tested -negative- for coeliac.
Blood test, no antibodies, but have all the symptoms which
manifest themself in diverticular disease. I have read, I
think in Dr. Kalle Reichellts webpages, that there is such
a thing as "symtpom-free" coeliac disease, maybe Elaine would
know?? After 3 years on SCD I am fine but any little relapse
results in return of sympoms, bleeding etc. and grain especially
wheat is the worst offender. Pre-SCD I would have had no way
of knowing that grain was a problem because, apart from being
totally hooked on bread, it takes between 4 and 6 days after
eating it for the physical symptoms to reappear, though the
"brain fog" is immediate. Does anyone else have this problem,
desperate carbo addiction which can only, like alcoholism,
be avoided by NEVER cheating?
cheers, annie
 more about Celiac (coeliac) disease
making the move from "gluten free"
to the SCD
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Jennifer Stenberg's story